Since my last update a lot has gone on. Mary was doing really well, so the doctor decided to push her a bit. He increased her feeds by saying she could take as much as she wanted up to 45 mL (but no less than 35 mL). He also had her start bottle feeding every time. She was still in the isolette, so she did really well with these changes. Then, on June 30 they took her out of the isolette and put her in an open crib with Timothy and Elizabeth. It was great getting to see all of them together! And Mary was doing a great job of keeping her temperature up and taking all of her feeds by bottle. Most of the time she knocked out 45 mL (1.5 ounces) no problem. But then Timothy and Elizabeth got discharged and she started to take a few steps backwards. She started struggling with taking her bottle at night and she also had a hard time regulating her temperature. So, they put her back in the isolette and put the feeding tube back in her nose. Right now they are giving Mary a bottle at every other feed. She is still getting between 35 and 45 mL at each feed. Since they made these changes, she has been gaining weight like crazy! She now weighs 4 lbs 5.1 ounces and is averaging a weight gain of about 1.5 - 2 ounces a day. When I saw her yesterday her temperature was extremely high (in the 99's) so they're talking about taking her out of the isolette and placing her in an open crib. The only thing holding her up now is the bottle feeding. She's still having a tough time taking her bottle. She does ok during the day when the therapists are working with her, but at night she doesn't do well. We think part of the problem is the night nurses are using the wrong nipple. The doctor wrote an order yesterday telling them to only use a certain nipple so we're hoping that will help some with her problems at night. Also, she's still requiring a little oxygen when she feeds because she gets winded so she needs get off of that. Once she's taking a bottle well at every feed (without having any spells) then she should be able to come home. We don't have a time frame on this, it all depends on her. Hopefully it'll only be another week or two! =) Add Comment |
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